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J
7 il y a des mois

I recently discovered an amazing organization that...

I recently discovered an amazing organization that focuses on sarcoidosis research. They are doing excellent work in raising awareness and funding for this challenging disease. The website offers a wealth of information and resources for patients and their families. I'm truly impressed by their commitment and dedication. Keep up the good work!

C
8 il y a des mois

Foundation for Sarcoidosis Research is doing a gre...

Foundation for Sarcoidosis Research is doing a great job in raising awareness and funding for sarcoidosis research. The website is informative and user-friendly, providing valuable resources and support to patients and their families. I highly recommend this organization!

J
9 il y a des mois

I recently discovered an incredible organization d...

I recently discovered an incredible organization dedicated to sarcoidosis research. Their work in raising awareness and funding research is remarkable. The website offers valuable resources and support. I highly recommend the Foundation for Sarcoidosis Research to anyone interested in supporting this cause.

B
10 il y a des mois

👍 This organization is making a real impact on the...

👍 This organization is making a real impact on the sarcoidosis community. Their efforts in raising awareness and funding for research are highly commendable. The website is easy to navigate and provides valuable resources and support. I'm grateful for the work they do, and I am proud to support the Foundation for Sarcoidosis Research!

C
Il y a 1 an

I recently came across a fantastic organization th...

I recently came across a fantastic organization that focuses on sarcoidosis research. They are doing incredible work in raising awareness and funding for this challenging disease. The website is a wealth of information, providing useful resources and support for patients and their families. I'm truly impressed by the Foundation for Sarcoidosis Research and their dedication to making a difference. Keep up the great work!

L
Il y a 1 an

I recently came across a wonderful organization th...

I recently came across a wonderful organization that focuses on sarcoidosis research. Their dedication and efforts to raise awareness and support patients are truly admirable. The website is well-designed and offers a wealth of information and resources. I highly recommend the Foundation for Sarcoidosis Research!

B
Il y a 1 an

🙌 The Foundation for Sarcoidosis Research is a fan...

🙌 The Foundation for Sarcoidosis Research is a fantastic organization. They are making a real difference in the lives of sarcoidosis patients. The website provides valuable resources and support. I'm grateful for their efforts in raising awareness and funding for research. Keep up the good work! 👏

E
Il y a 1 an

The Foundation for Sarcoidosis Research is doing a...

The Foundation for Sarcoidosis Research is doing a tremendous job in raising awareness and funding for sarcoidosis research. Their dedication and commitment to finding a cure for this rare disease is truly commendable. I am grateful for the work they are doing and the support they provide to patients and their families. The website is informative and user-friendly, making it easy to access valuable resources and information. I highly recommend this organization to anyone looking to support a worthy cause.

A
Il y a 1 an

I appreciate the work done by the Foundation for S...

I appreciate the work done by the Foundation for Sarcoidosis Research. Their commitment to raising awareness and funding research for sarcoidosis is commendable. The website is informative and provides valuable resources for patients and their families. I highly recommend this organization!

1
Il y a 1 an

As someone affected by sarcoidosis, I am glad to h...

As someone affected by sarcoidosis, I am glad to have found the Foundation for Sarcoidosis Research. They are doing incredible work in raising awareness and funding research for this disease. The website is user-friendly and offers a wealth of resources and support. Their commitment is truly commendable. Thank you!

K
Il y a 1 an

I'm really pleased with the Foundation for Sarcoid...

I'm really pleased with the Foundation for Sarcoidosis Research and the work they are doing. The website is easy to navigate and provides helpful information for patients and caregivers. I appreciate their dedication to raising awareness and finding a cure for sarcoidosis. Highly recommend!

P
Il y a 1 an

The Foundation for Sarcoidosis Research is doing a...

The Foundation for Sarcoidosis Research is doing amazing work in their efforts to raise awareness and support research for this disease. The website is user-friendly and provides valuable information and resources. I'm grateful for their dedication and the difference they are making in the lives of patients and their families.

À propos de Foundation for sarcoidosis research

La Fondation pour la recherche sur la sarcoïdose (FSR) est une organisation à but non lucratif qui se consacre à la recherche d'un remède contre la sarcoïdose et à l'amélioration des soins aux patients qui souffrent de cette maladie. La sarcoïdose est une maladie inflammatoire qui affecte plusieurs organes du corps, notamment les poumons, le cœur, la peau et les yeux. Il peut provoquer une gamme de symptômes tels que l'essoufflement, la toux, la fatigue, les douleurs articulaires et l'enflure.

La FSR a été fondée en 2000 par un groupe de patients frustrés par le manque de recherche sur la sarcoïdose. Depuis lors, il est devenu l'une des principales organisations dans ce domaine. La mission du FSR est de financer la recherche sur la sarcoïdose et d'apporter un soutien aux patients et à leurs familles.

L'un des principaux moyens par lesquels FSR réalise sa mission est de financer des projets de recherche. L'organisation a financé plus de 4 millions de dollars en subventions depuis sa création. Ces subventions ont soutenu des études sur des sujets tels que la génétique, l'immunologie et les options de traitement de la sarcoïdose.

En plus de financer directement des projets de recherche, FSR collabore également avec d'autres organisations pour faire progresser les connaissances sur la sarcoïdose. Par exemple, il s'associe à des institutions universitaires telles que la Johns Hopkins University School of Medicine pour mener des essais cliniques sur de nouveaux traitements de la sarcoïdose.

Un autre aspect important du travail de FSR consiste à fournir des services de soutien aux patients et à leurs familles. Cela comprend des ressources éducatives sur la sarcoïdose ainsi que des groupes de soutien où les gens peuvent se connecter avec d'autres qui vivent des expériences similaires.

FSR défend également les intérêts des personnes atteintes de sarcoïdose en sensibilisant les décideurs politiques et les professionnels de la santé à cette maladie. Cela comprend des efforts de lobbying aux niveaux étatique et fédéral pour augmenter le financement de la recherche sur les maladies rares comme la sarcoïdose.

Dans l'ensemble, la Fondation pour la recherche sur la sarcoïdose joue un rôle essentiel dans l'avancement de notre compréhension de cette maladie complexe tout en fournissant des services de soutien indispensables aux personnes touchées. Grâce à son dévouement à trouver un remède contre le sarcoisodis, le FSC continue de progresser vers l'amélioration des résultats des soins tout en défendant sans relâche les personnes touchées par cette maladie débilitante.

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Foundation for sarcoidosis research

Foundation for sarcoidosis research

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