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A
5 il y a des mois

The ehe foundation 😊 is doing an outstanding job i...

The ehe foundation 😊 is doing an outstanding job in fighting EHE. Their continuous efforts and research in finding a cure for this disease are truly impressive. I have immense respect for the team and hope that they keep up the good work. 👍

S
6 il y a des mois

It's amazing to see the ehe foundation making such...

It's amazing to see the ehe foundation making such a positive impact in fighting ehe. Their website fightehe.org has all the necessary information and resources in one place. I am grateful for their efforts and dedication.

M
6 il y a des mois

The ehe foundation is doing a great job. I am real...

The ehe foundation is doing a great job. I am really impressed with their commitment towards fighting ehe. The website fightehe.org is very informative and user-friendly. Keep up the good work! 👍

J
6 il y a des mois

The resources available on the ehe foundation's we...

The resources available on the ehe foundation's website fightehe.org are top-notch. They have done an excellent job in raising awareness and fighting against ehe. I highly recommend their work.

L
6 il y a des mois

The ehe foundation's website fightehe.org is an ex...

The ehe foundation's website fightehe.org is an excellent resource for anyone seeking information about the disease. I really appreciate their efforts in spreading awareness and making a difference. Thumbs up!

D
7 il y a des mois

I recently came across a foundation fighting again...

I recently came across a foundation fighting against a certain disease. Their website fightehe.org provides valuable information about the disease and ways to prevent it. The resources available on the website are really helpful. Kudos to the team for their efforts!

T
8 il y a des mois

The ehe foundation provides valuable information a...

The ehe foundation provides valuable information and resources through their website fightehe.org. Their efforts to raise awareness and fight against ehe are commendable. I truly believe in their mission and support their cause.

R
8 il y a des mois

I have been following the work of The ehe foundati...

I have been following the work of The ehe foundation, and I must say their dedication in fighting EHE is commendable. The impact they have made in raising awareness about this rare cancer is incredible. I hope more resources are allocated towards finding a cure. #FightEHE

B
9 il y a des mois

I found the website fightehe.org extremely helpful...

I found the website fightehe.org extremely helpful in understanding the disease and ways to prevent it. The ehe foundation's work is really commendable. They are making a significant impact in the fight against ehe.

N
9 il y a des mois

I recently learned about The ehe foundation and th...

I recently learned about The ehe foundation and their work in fighting EHE. Their dedication towards raising awareness and finding a cure is truly commendable. They are making a significant difference in the lives of patients and their families. Keep up the good work!

J
9 il y a des mois

The ehe foundation is making a positive impact on ...

The ehe foundation is making a positive impact on the lives of EHE patients. The support they provide is truly remarkable. Their website and resources are informative and helpful. I appreciate their work towards finding a cure for this rare cancer.

T
9 il y a des mois

Recently, I discovered an organization dedicated t...

Recently, I discovered an organization dedicated to EHE research. Their efforts are truly praiseworthy. By focusing on finding a cure and improving the lives of EHE patients, they are making a significant difference. I am grateful for their work.

K
10 il y a des mois

I recently came across a foundation dedicated to f...

I recently came across a foundation dedicated to fighting EHE. Their website doesn't mention the name, but their work is praiseworthy. Their dedication towards finding a cure for this rare form of cancer is truly remarkable. I hope more people get to know about them and support their cause.

P
11 il y a des mois

The ehe foundation has been working tirelessly to ...

The ehe foundation has been working tirelessly to combat EHE. Their dedication and commitment are truly inspiring. The awareness campaigns they have organized have helped to educate many people about the disease. I am grateful for their efforts.

C
11 il y a des mois

I came across a foundation fighting a certain dise...

I came across a foundation fighting a certain disease and found their website to be very informative. The resources provided on fightehe.org are really useful in understanding the disease and its prevention. I appreciate the work done by the foundation.

S
11 il y a des mois

👏 This foundation is doing an excellent job in spr...

👏 This foundation is doing an excellent job in spreading awareness about the disease. The website fightehe.org is a great resource for people looking for information. I appreciate the team's dedication and their contribution to the cause.

C
Il y a 1 an

I stumbled upon the ehe foundation's website fight...

I stumbled upon the ehe foundation's website fightehe.org and it has been a great source of information for me. They have done a fantastic job in raising awareness about the disease. Keep up the good work!

T
Il y a 1 an

The ehe foundation is doing an average job in figh...

The ehe foundation is doing an average job in fighting EHE. While their efforts are commendable, there is still a long way to go in terms of research and finding a cure for this rare cancer. They need to focus more on spreading awareness and collaborating with other organizations to maximize their impact.

E
Il y a 1 an

The ehe foundation is doing a great job in spreadi...

The ehe foundation is doing a great job in spreading awareness about the disease. Their website fightehe.org provides valuable information and resources. I am impressed with their dedication and commitment to fighting ehe.

P
Il y a 1 an

👍 The ehe foundation is truly making a difference ...

👍 The ehe foundation is truly making a difference in the fight against ehe. Their website fightehe.org is a valuable resource for anyone looking for information about the disease. I am impressed with their work!

C
Il y a 1 an

I want to express my gratitude towards The ehe fou...

I want to express my gratitude towards The ehe foundation for their efforts in fighting EHE. Their dedication to both awareness and research is impressive. The impact they have made on patients' lives is significant. Thank you for what you do!

À propos de The ehe foundation

La Fondation EHE : Poursuivre un traitement efficace pour les patients et les familles EHE

La Fondation EHE est une organisation à but non lucratif 501c3 qui se consacre à la recherche d'un traitement efficace pour l'hémangioendothéliome épithélioïde (EHE) et au soutien des patients et des familles EHE. La fondation a été créée en 2009 par un groupe de personnes touchées par cette forme rare de cancer, qui affecte la muqueuse des vaisseaux sanguins.

L'EHE est un type rare de cancer qui peut survenir dans n'importe quelle partie du corps, mais il affecte le plus souvent le foie, les poumons, les os et les tissus mous. On estime que seulement une à deux personnes sur un million sont diagnostiquées avec cette maladie chaque année. En raison de sa rareté, les options de traitement disponibles pour les patients atteints d'EHE sont limitées.

La mission de la Fondation EHE est de sensibiliser à cette maladie rare et d'apporter un soutien à ceux qui en sont affectés. La fondation travaille en étroite collaboration avec des professionnels de la santé et des chercheurs pour développer des traitements efficaces pour les patients EHE.

L'un des principaux objectifs de la Fondation EHE est de financer la recherche de nouveaux traitements pour cette maladie. Grâce à des partenariats avec des institutions médicales de premier plan dans le monde, la fondation a pu soutenir des recherches révolutionnaires sur de nouvelles thérapies potentielles pour l'EHE.

En plus de financer des initiatives de recherche, la Fondation EHE fournit également des services de soutien aux patients et à leurs familles. Cela comprend les mettre en contact avec d'autres personnes qui ont été touchées par cette maladie par le biais de forums en ligne et de groupes de soutien locaux.

La fondation fournit également des ressources éducatives sur l'EHE afin que les patients puissent mieux comprendre leur diagnostic et prendre des décisions éclairées sur leurs options de traitement. Cela comprend des informations sur les essais cliniques ainsi que sur les thérapies alternatives qui peuvent être disponibles.

Un autre aspect important du travail de la Fondation EHE est le plaidoyer au nom des personnes touchées par cette maladie. En sensibilisant aux défis auxquels sont confrontées les personnes vivant avec des maladies rares comme EHPHILIPENDOENDOTHELIALIOMA, la fondation espère encourager les décideurs politiques et les prestataires de soins de santé à donner la priorité à la recherche de nouveaux traitements.

Dans l'ensemble, la Fondation EHE est une ressource vitale pour les personnes et les familles touchées par cette forme rare de cancer. Grâce à son engagement à financer la recherche, à fournir des services de soutien et à défendre les droits des patients, la fondation a un impact significatif dans la lutte contre l'EHE.

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The ehe foundation

The ehe foundation

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